Related Links

KidsHealth
If you're looking for information you can trust about kids and teens that's free of "doctor speak," you've come to the right place. KidsHealth is the most-visited site on the Web for information about health, behavior, and development from before birth through the teen years.

American Heart Association
Building healthier lives, free of cardiovascular disease and stroke is the mission of The American Heart Association.  On their site, you can find information about a number of congenital heart defects, including signs and symptoms, the impact that these defects can have on your life, and some valuable tools and resources for your use.

The Congenital Heart Information Network
C.H.I.N. is a national organization that provides reliable information, advocacy, support services, financial assistance and resources to people affected by Congenital Heart Defects.  Find links to other sites, resources for you to use as a parent of a child with a congenital heart defect and an online community that allows you to connect with other families living with congenital heart defects.

Katie Manning's Blog
Katie's dad, Alan, chronicled Katie's life on a blog.  The blog includes thoughts about Katie's congenital heart defect, her hospital stays, and what it was like being thrown into a world of congenital heart defect
s.

The Cove
The Cove provides family and school-based programs utilizing the peer support group concept for helping children, teens and families work with their unresolved grief due to the death of someone significant in their lives and other traumatic losses. The Cove also provides professional development and training for adults working with children and teens.

Lotsa Helping Hands
One of the most frequently heard questions from friends and family members when you're in the hospital with a sick child is "What can I do to help?". Lotsa Helping Hands allows you to create a free, private Community web site to organize family and friends during times of need. Use the calendar in your private Community to match volunteers to needed tasks. Send announcements to keep everyone up to date.

Back to top ↑